According to a 2015 study published in in Gifted Child Quarterly (April: 108-123), The Advocacy Experience of Parents of Elementary Age, Twice-Exceptional Children, many parents find successfully advocating for their 2e child to be “intimidating and overwhelming.” The study also concluded that “the lack of readily available resources focusing on twice-exceptional children was an obstacle to successful advocacy.” In this area of the 2e Newsletter website, we will provide resources and news aimed at helping parents become effective advocates for their children and to help young people who are twice-exceptional become effective self-advocates.
- "2e and IDEA: The Right to Assessment and Services,” 2e Newsletter
- “15 Do’s and Don’ts of Advocacy,” Guiding the Gifted
- "Advocate for Your Child," National Association for Gifted Children
- “Advocating for the Twice-Exceptional Child,” Gifted Parenting Support
- “Advocating with Diplomacy,” Guiding the Gifted
- "Advocacy - Working with Your Child’s School," Davidson Institute Gifted Database
- "Ensuring Gifted Children with Disabilities Receive Appropriate Services: Call for Comprehensive Assessment," NAGC position statement
- “Getting a New Parent Organization Off the Ground,” 2e Newsletter
- “How to be Your Child’s Best Advocate: Collect, Communicate, Collaborate,” 2e Newsletter
- “How Do I Advocate for My Twice-Exceptional Child?” 2e Newsletter
- "Matt's TOP 13 Key Points: Office for Civil Rights Releases New Dear Colleague Letter Strengthening Rights of Students with ADHD Under Section 504," Special Education E-News
- “Working with Schools: Advocating for Gifted Children with Learning Disabilities,” Northwestern University CTD Newsletter
- “Helping 2e Children Develop their Voices: Self-Advocacy,” 2e newsletter
- “Nurturing Self-Advocacy,” Global #gtchat Powered by the Texas Association for the Gifted and Talented
- A Guide to Special Education Advocacy: What Parents, Clinicians and Advocates Need to Know, by Matt Cohen
- Academic Advocacy for Gifted Children: A Parent's Complete Guide, by Barbara Jackson Gilman
- Ask and Tell: Self-Advocacy and Disclosure for People on the Autism Spectrum, Stephen M. Shore (ed.)
- From Emotions to Advocacy, by Peter and Pamela Wright
- Stand up for Your Gifted Child, by Joan Franklin Smutny
- Clarifications of Federal Law as It Applies to Twice-exceptional Students
- OSEP [Office of Special Education Programs] Memos, Dear Colleague Letters, and FAQs (From the website: "OSEP Policy Letters provide information, guidance and clarification regarding implementation of the Individuals with Disabilities Education Act (IDEA) through two types of issuances: OSEP Memos and Dear Colleague Letters."
- Hoagies Gifted Education Page, Advocacy for Gifted Students
- Texas Association for the Gifted and Talented, Advocacy
- Twice Exceptional Children’s Advocacy, Inc. (TECA), Advocacy Basics
- Understood.org, “Be an Advocate” Training Center
- Wrightslaw, Special Education Advocacy
Parent Advocacy Organizations
- Decoding Dyslexia (www.decodingdyslexia.net/home.html): a parent-led movement with a set of well-defined policy goals. The organization has a presence in every state across the U.S.
- MidColumbia 2e (MC2e) (www.facebook.com/MidColumbia2e): a grass roots, parent-led advocacy/education group serving the MidColumbia region of Washington State (south-central Washington). The group began two years ago and now has over 40 local families following its Facebook page
- TEAM+ (http://www.meetup.com/Twice-Exceptional-Advocacy-by-Moms-TEAM): a meetup in Alexandria, VA, for school advocacy with the mission of improving services in area schools for 2e kids by sharing resources, providing support for fellow members, and raising their collective VOICES in strategic ways to effect change. (The organizers note that the organization "isn't just for moms, but TEAM+ was a better acronym than TEAP, or TEAMD....")
Advocacy Training for Parents
- With Understanding Comes Calm, www.withunderstandingcomescalm.com/services-for-parents
- Wrightslaw special education law and advocacy programs, ww.wrightslaw.com/speak/schedule .htm
Advocacy: Decoding Dyslexia Virginia (2e Newsletter, September, 2016)
Is there language like this in the legislation that governs teacher preparation and licensure in your state? “The Department of Education shall collaborate with the State Council of Higher Education for Virginia to ensure that all teacher preparation programs offered at public institutions of higher education in the Commonwealth or otherwise available convey information on the identification of students at risk for learning disabilities, including dyslexia, other language-based learning disabilities, and attention deficit disorder.”
Last February, a group of parent advocates working under the auspices of Decoding Dyslexia Virginia (DDVA) traveled to the state capitol and met with delegates and state senators about dyslexia-related issues. One item of discussion was proposed legislation requiring that aspiring teachers receive information on identifying students with dyslexia and other learning challenges.
Were the advocates successful? A few weeks after the meetings, the language quoted earlier was enacted into law, which will take effect next year. One of the parent advocates, Laurie DuCharme, a subscriber to 2e Newsletter, calls Decoding Dyslexia Virginia a valuable resource for her family. “DDVA has inspired my husband and me to learn so much more and do more so that our two twice-exceptional children may become more,” says DuCharme. “We have been inspired to advocate, educate, and legislate for our children.”
Decoding Dyslexia is a parent-led movement with a set of well-defined policy goals. The organization has a presence in every state across the U.S. Find out more at www.decodingdyslexia.net/home.html.